Cali's Story

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Even before Cali was born, we were facing complications but doctors assured us things would be fine. We hoped each appointment would bring reassurance. Then, when she was six months old, we learned she had Williams syndrome, a rare genetic condition we had never heard of.

Suddenly, we were learning about heart conditions, developmental delays, and all the things we would need to watch for as she grew. Cali’s days began to include cardiology visits, specialists, and physical therapy. We traveled to meet a cardiologist who specializes in Williams syndrome and faced medical decisions we never expected to make for our baby. 

Some appointments have brought relief. Others have left us with new questions. Even when the news is good, it can be hard to set aside the worry about what the next visit might bring.

Cali is doing well, and we are deeply grateful. We also know that another family may be sitting in a hospital waiting room today, facing a surgery, struggling to find the right specialist, or wondering how they will afford the travel and care their child needs. Every child’s journey is different. Every family deserves someone in their corner.

When we were trying to find our footing, people showed up for our family. They listened, checked in, helped us find answers, and reminded us that we did not have to carry everything alone. That support mattered more than we can say.

We started Cali’s Courage so we could help offer that same sense of support to families facing Williams syndrome across the country. Our work is focused on family support, education, community, and research. We want parents to find answers and connection, and we want children to have every opportunity to receive the care and support they need.

Cali is the heart of our story. Every family facing Williams syndrome is the reason we keep going.

Inspired by Cali. Powered by courage. Here for every family facing Williams syndrome.